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Access levels

Access levels

Open Access

  • Eligibility: Only anonymised datasets can be hosted under open access.
  • Legal/GDPR Implications: Data must be fully anonymised, meaning no individual can be identified directly or indirectly.
  • User Responsibilities: All users must comply with ethical standards and the Terms of Service, but no additional approval is required for access.

Controlled Access

  • Eligibility: Datasets containing personal or sensitive data, or those with specific use restrictions, must be hosted under controlled access.
  • Data Access Committee: Access requests are reviewed by a Data Access Committee (DAC), which evaluates eligibility, intended use, and compliance with the Data Access Policy.
  • Legal/GDPR Implications:
  • The Data Provider acts as the Data Controller and must define use conditions and restrictions in the Data Access Policy.
  • ELIXIR Luxembourg acts as the Data Processor, ensuring secure storage and processing.
  • Users must submit a Data Access Request Form and sign the Data Use Agreement (DUA) and Data User Responsibility Acknowledgement (DURA).
  • The DAC ensures that access is granted only to eligible users and that all processing is GDPR-compliant.
  • Audit and Oversight: The DAC may periodically review access logs and compliance.

Summary Table

Hosting Option Data Type Access Process Legal/GDPR Requirements
Open Access Anonymised data Direct, unrestricted De-identification, ToS compliance
Controlled Access Personal/sensitive DAC review, agreements Data Access Policy, DUA, DURA, GDPR